Thursday, 6 September 2012

Taken by Surprise

I had some great responses about the Echo article, a majority of them were my gorgeous family and friends but it seems all the retweeting, sharing and forwarding that everyone did got my plans out there!

I have one friend running a 10k in aid of Motivation, a friend who wishes to have a musical evening at their piano shop, my favourite little cafe’ and I are in discussion for a charity meal and several people have been e-mailing regarding donating their shoes (see Plans for Motivation here).

So, we have lots planned, all very exciting! Will keep you posted and hope that more of you get involved!
I’m desperate to get all of these evening running and sorted for next week but I have to reign in my plans and take it slowly at the moment.

The CRPS/RSD is still getting worse and I’m spending an increasing amount of time in bed or passed out on a sofa (literally!). I’m finding it hard not to get down about it, even though my lovely boy is home from California, I’m hardly the ball of energy and life he’d probably like to see.

To my surprise a constant companion of mine has been the Olympics and Paralympics. I spent the last five years since London got the bid, refusing to believe I would be taken in by all the hype and as I’ve mentioned on many occasions here – I don’t do sport! Watching, following or playing sports just doesn't appeal to me. 

I think it’s because I’m not competitive (unless I’m playing Monopoly against my brother Michael who’s a bad loser and an even worse winner!) but either way right up until the opening ceremony I was not going to spend hours watching something I didn’t enjoy just because we were hosting it.

Well, from the moment I saw our Queen doing a spoof scene with James Bond I was hooked!! I’ve spent many an afternoon glued to my TV getting so into the events that I’ve found myself hyperventilating, shouting at the box as though they can actually hear me and on occasion stood up with some vigour only to realise that wasn’t a great idea, it hurts a lot and collapsed back on the sofa!

I actually got competitive! I had many conversations about the medal ratio to countries population and by definition we were kick the rest of the worlds butt!

It’s lovely to see everyone as geared up for the Paralympics as they were for the Olympics. I did worry that it would be seen as a sub event, a winding down from the big event, but the news, facebook, twitter and countless blogs are all still as excited as I am!

To address a few messages I’ve had regarding athletes having CRPS/RSD and “if they can get up and do something why can’t you?” as I’ve explained before CRPS/RSD is different for every person, as is every other condition. We all have limits and some of us are luckier to have the gumption and higher pain threshold to deal with the condition better.

Although look at Rachel Morris – hand cyclist, gold medallist and CRPS sufferer. She gained a Gold in Beijing and sadly she had to have both legs amputated because of the condition, it got so bad, so painful and life was so unbearable that she had to have the amputations.

Rachel Morris -  Gold Medallist - CRPS Suffer

Life for Rachel is no doubt still incredibly difficult without her legs but she’s doing great things, like Rachel defending her gold medal many of us are defending our bodies against the condition trying not to end up having to take such extreme measures. 

Although the last month has brought day’s where I would kill for my legs to be amputated, I’m taking small steps (every pun intended!) to keep going, get out of bed and have a life even if it’s entirely done from my bedroom!

L x

1 comment:

  1. Just to add some more to the bit about others with RSD/CRPS not being Paralympians: Do we ask able-bodied people why they didn't compete in the Olympics? No! Also, there are many with RSD/CRPS who have additional conditions - I have migraine, asthma & anxiety as well as my CRPS.

    Great post Lynsey x


Thank you for posting. Should you wish to contact me privately e-mail