I wanted to write a letter to you all, keeping you up to date on my little world and adventures. Well, I say adventures but my life seems to have paused for the time being.
The old CRPS pain is putting me through the mill, whilst kicking me in the shin and stomach then covering me in oil and feathers for comedy effect.
I’m suffering, the pain is bad, and possibly getting worse, my lovely GP has put up my medications (of which there are now 9 of them!) so I should be grateful for them taking the edge of the burning, twisting and spasms but in the process of all these medications, I’ve lost my mind somewhere along the way, I’ve become a dozy mare and forget where my shoes, stick, handbag, phone etc are, on a regular basis.
I spend half my days on the loo and the rest of the time guzzling water to combat a wonderfully yucky side effect of a dry mouth, I’m talking Sahara desert dry, tongue stuck to the roof of my mouth dry – all while my left leg has such terrible spasms and cramps that I’m practically Irish dancing whilst sat down - I’m so attractive right now!
My social life has taken a hit too – the ultimate price of illness, you see less of your family, friends and the outside world and when you do see any one you apologise for forgetting their visit was ever occurring and then do an Irish dance whilst they look at you in full pity!
I’m seeing some friends for a Halloween night out and have said I’ll only be out until my bed time – which is currently 10pm at the latest – it sucks!
On a more positive note The Gogo scooter died *sad* but I do have a new mobility scooter called an Eclipse *yay!*. So we’ve named him MR Eclipse as he’s more robust that the old Gogo and no I won’t be changing this blog name as I’ll then seem like I’m married to a mobility aid and as crazy as I feel I’m going at the moment I’m not THAT loopy just yet!